RI-CART GENETICS SURVEY

We invite you, as members of the RI-CART community, to complete a short survey that will help us understand the barriers, challenges, and opportunities of clinical genetic testing for ASD. 

We would like to get the widest perspective possible and would appreciate knowing from people who are in favor or against genetic testing for ASD, from people who have been tested and those who haven’t, and from people familiar with genetics concepts and those for whom all of this is new information. In appreciation of your prompt participation in this survey we will provide you with a $20 or $10 gift card. Thank you for your partnership in helping the ASD community! 

If you have any questions about our study or want to learn more about any of the areas included here, please don’t hesitateto contact Dr. Daniel Moreno De Luca at (401) 432-1200 or ricart@lifespan.org.

Child Language Study

We hope that you will join us in our efforts to find out how children with ASD learn!

The Child Language Lab at Boston University is looking for healthy, English-speaking children from ages 19 months to 6 years who have been diagnosed with Autism Spectrum Disorder (ASD) to participate in research on language and cognitive development. Our studies take place in a comfortable setting at Boston University's Charles River campus. Parents participate with their children in two play sessions, which usually last about an hour and a half. During this play session, we show the child short video clips and play with them with toys and pictures. There is a small monetary compensation for participation and free parking is provided. 

 If you are interested in participating, or in receiving more information, call us at (617) 353-3379 or visit our website at: www.bu.edu/childlanguage.

Autism & Development Disorders Inpatient Research Collaborative (ADDIRC)

The goal is to develop a comprehensive registry of clinical and biological data on severely affected children and adolescents with autism

It's a research platform of specialized child psychiatry hospital units that serve children and adolescents with autism and developmental disorders.The Autism & Development Disorders Inpatient Research Collaborative (ADDIRC), founded in 2011, is a collaboration of specialized child psychiatry hospital units, including Bradley Hospital, that serve children and adolescents with autism and developmental disorders.

To learn more about this study please contact Eliza at 401-432-1146 or email RICART@Lifespan.org.

 Development of the Theory of Mind Inventory for Adult Self Report (ToMI-Adult-SR)

This study is being conducted to develop a tool to measure “theory of mind” in adults.  Theory of Mind is defined as the ability to recognize and understand thoughts, beliefs, desires, and intentions of other people in order to make sense of their behavior and predict what they are going to do next.

You are being invited to take part in this research study because you are 18 years old or older, and you are fluent in the English language. This study is being conducted by Laura Lewis, Tiffany Hutchins, and Patricia Prelock at the University of Vermont. Center for Children at Women & Infants Hospital and families are reimbursed for their time. 

RI-CART STUDY

Our goal is to connect as many individuals and families impacted by autism and related neurodevelop-mental disorders with research studies and resources.

Kids and adults are invited to join an ever-growing number of people in Rhode Island and nearby

communities who have already come together to move ahead with autism. Working together, we can achieve our mission of advancing treatment and improving the quality of life for people on the autism spectrum.

To learn more contact us by phone at (401) 432-1200 or by email at RICART@Lifespan.org

Physiological Responses and Observations

The goal of this project is to learn more about how the minds and bodies of adults with Autism Spectrum Disorders (ASD) react to their social environment. 

The PRO study is open to 18-25 year old adults with autism or typically developing adults. Participants

 will have their physiology(heart and nervous system responses)recorded non-invasively during a lab visit and some participants may be given equipment to take home and wear overnight. 

To learn more contact Hasmik Tokadjian by phone at 401-453-7637 or by email at WHAutism@carene.org

The PHOEBE Study—Physiology of Emotion, Behavior, and Engagement 

A goal of the PHOEBE study is to develop measurement techniques used to improve diagnosis and prediction of functional outcomes

The PHOEBE study is enrolling children ages 2-6 with autism, as well as children with typical development and children with other forms of development delay. Participating in the study involves 2 visits to the Brown Center for Children at Women & Infants Hospital and families are reimbursed for their time. 

To learn more contact Hasmik Tokadjian by phone at 401-453-7637or by email at WHAutism@carene.org

Closed to Enrollment:

©2019 by Rhode Island Consortium For Autism Research and Treatment

Contact us / Contáctanos ricart@lifespan.org

Tel: (401)432-1200

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