Carolyn McCormick, Brian Kavanaugh, Danielle Sipsock, Giulia Righi, Lindsay Oberman, Daniel Moreno de Luca, Ece Gamsiz Uzun, Carrie Best, Beth Jerskey, Joanne Quinn, Susan Jewel, Pei-Chi Wu, Rebecca McLean, Todd Levine, Hasmik Tokadjian, Kayla Perkins, Elaine Clarke, Brittany Dunn, Alan Gerber, Elena Tenenbaum, Thomas Anders, Rhode Island Consortium for Autism Research and Treatment, Stephen Sheinkopf, Eric Morrow
The paper describes important findings from the first 1,000 individuals enrolled in RI-CART. We have learned much about the strengths and complex needs of individuals with autism, from young children to older adults. Several things are highlighted in this paper:
In RI-CART, girls with autism were diagnosed 1 1/2 years later than boys. The lesson: we need to improve early detection and diagnosis for girls and for children without delays in language
Participants in RI-CART often struggled with mental health challenges and had diagnoses that are in addition to the ASD diagnosis. Lesson: we need to attend to the whole person and we need to improve access to mental health services for all.
And RI-CART was able to partner with and enroll well over 20% of all children with ASD in Rhode Island. In fact, including all participants in RI-CART (not just those included in the recent publication), over 40% of children with ASD in Rhode Island have participated in RI-CART.